MILESTONES - 2 years since diagnosis and Michelle's 30th Birthday
Michelle took her tri-annual trip down to Duke for a check-up to see how she is doing. At our last trip, she was having progressive weakness in her hips, making her more susceptible to tripping/falling and was having progression in her hands and arms. Her FVC rates were still normal, though a little lower. The team urged her to try using a walker to help with stabilization and Michelle all but gave them the finger. *laughs* That is my beautiful, stubborn wife.
This trip went better than anyone could have asked for. Her FVC (forced volume vital capacity) rate was BETTER than last trip! Haha! She also had such minimal progression with her arm weakness that she hadn't noticed any differences. Dr. Bedlack said that he only noticed a very slight change since her last visit, which was wonderful news. The physical and occupational therapists only stopped by for a few minutes because they've come to realize that the only thing that will put Michelle in a wheelchair or walker at this point would be getting hit by a bus.
This trip was a huge celebration, because it marked 2 years since her initial diagnosis. Dr. Paschall gave us the name of Dr. Richard Bedlack and here we are. This trip also marked another HUGE milestone - Michelle turned 30! There is so much to be thankful for. Things are going so well that Michelle does not have to go back for another 6 months.
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