Tuesday, November 16, 2010

Walk to Defeat ALS 2010 - Miles for Michelle


Our friend, Melanie - also diagnosed with ALS in her late 20's


Our little miracle baby


Our friend and inspiration, Libby - also diagnosed with ALS in her late 20's


Our fighter, Michelle




We made it to another year for the annual ALS Walk. October made 2 years since Michelle was diagnosed with ALS. In October of 2008 they were giving us that long for Michelle to live and, here she is, 2 years later, kicking butt. We have felt so incredibly thankful over the past two years to have become linked to our local ALS Association Chapter and our wonderful social worker, Sarah. We have also been fortunate to join the lives of a few families who are also battling ALS. Lucy, Craig, Libbie, Melanie, and Shawna have been our rocks for the past couple of years. Sadly, we lost Lucy and Craig before this years walk. What we are learning with ALS is that loving others with this disease means being prepared for losing them, too.

We felt fortunate to bring our little miracle baby to the walk with us this year. Michelle was pregnant during the 2009 Walk and we were all crossing our fingers that things would go well. With very few women of child bearing age diagnosed with ALS, there was no research on pregnancy and ALS. But we had our incredible neurologist, Richard Bedlack, our incredible OB, Christine Isaacs, and Michelle's fiery spirit.

Thank you to all who donated to support our fight and bring more money to research for a cure and care for those living with ALS. Your donation directly impacts our life every day and we cannot possibly explain our gratitude.

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